Friday, May 22, 2015

Sleep: Is It Only An Illusion?

Chemotherapy hasn't been nice to my sleep patterns. This week, after the coma-inducing Benedryl wore off, the energizing steroids took over and I was up all night. It's more than annoying. I want to participate with the rest of the world doing the usual morning, noon and night routines, but the drugs won't allow it. So I go to bed at the "usual" time, then wake up three or four hours later ready to get on with the day, which would be fine if the rest of the world were also ready. It's not. So I spend the early hours of the morning checking and answering email, catching up on the news of the day, planning menus and shopping lists, indexing World War II draft records (or marriages in Colorado or wherever), and writing. And then I nap later in the day when I get tired again.

My hubby/hero/caregiver needs seven or eight hours of sleep each night. Normally I can get along with five or six. But not much is normal these days, although I try mightily to make it so. We muddle through.

Normal? What's that? Maybe I should readjust my expectations. Tiredness comes all at once, like a surprise. I'm in the middle of fixing a meal, reading a book, watching Antiques Roadshow, etc. and suddenly I get droopy, as if a two-by-four had been applied to the side of my head, and I find myself unable to continue. Fortunately, nearby daughter or granddaughter can come by and finish the food projects, but the other stuff just has to wait.

Chemo #10 has come and gone. Sweet Nurse daughter-in-law was there with me for a while. She had come directly from the train after her 12-hour shift so she only stayed a short time until I was hooked up for the infusions and then she went home to sleep.

During my chemo respite last week, Colorado Girl came for a few days and we spent time photographing family heirlooms and recording the history of each. I'm grateful that she cares about her family heritage. Her guest room has a display of things she values--grandmothers' teacups and milk glass, grandfather's leather wallet, parents' wedding gifts, etc.--and she has published a guidebook to identify and establish the history of those things that remind her and her children of who they are and where they came from. It was great to have her here. We celebrated all week.

After chemo #11 on May 26 and #12 on June 2, I'll have another scan of some sort to assess where we are, or more specifically, to see where the cancer is, or isn't. Except for the swelling and the topsy-turvy sleep patterns, I'm feeling okay. Lesions are nearly all gone from my left breast, the tumor is much smaller, and the affected glands have softened considerably.

Big event of the week: I was able to go to the book signing at the LDStorymakers conference at the Utah Valley Convention Center downtown, where my books were available at the temporary bookstore. Writers are book junkies, and while sales are nice, the emphasis at that kind of event is on schmoozing. I met someone willing to review my books and talked with writer friends I haven't seen in a while. I saved up my energy for a couple of days, but I found that making the effort to be there was more energizing than steroids.

1 comment:

jww said...

Great progress, but the sleeping problems are so tough. Glad we could all be there close for a few days, and I'm glad the others are all there to help you. I'm also glad you had fun with your writer friends. That's so nice.