Tuesday, June 23, 2015

98.6 and Other Myths

According to weather forecasters, Utah is entering into a period of extreme summer heat. It's supposed to get into three digits by the weekend. I personally wouldn't know the difference because I am always cold. A sluggish thyroid is to blame, but so is cancer.

On chemo day, once the implanted port has been accessed and the infusions begin, I start feeling cold immediately. One of the best things about the treatment center is the heated unit full of blankets. Fortunately the "minions" who accompany me have learned by now that the way the blankets are folded in the heater is lengthwise, making them perfect to cover people six feet tall and 130 pounds... which I am not. Once I get settled into the reclining lounger, my people choose the heavier blankets, rather than the tissue-thin flannel sheets and refold them the other direction so they're wide enough to cover me. They tuck the blankets under my feet and all the way up behind my shoulders. It really helps counteract that cold liquid being infused into my body. I used to bring a book to read, but now I opt for the music stored on my phone. Something serene happens then when I'm warm and listening to my music.

In all my adult life, if my temperature has been 98.6 (normal for everybody else) it's an indication that I'm sick. A couple of times in the past four months of chemotherapy treatment my temperature has gone up to 98.0 and 98.4, but never 98.6. For a day or two after the chemo, I also experience a face flush, making my cheeks feel warm and look pink and healthy, but my temperature never goes up.

Side effects include neuropathy in hands and feet--tingling sensations, sort of like what my nephew once described as "7Up in your fingers." Many of my fingernails have what looks like bruises, but it's blood pooling in the nail beds, making them tender to the touch. I'm grateful that I can still type. Neuropathy in the feet is another issue. My feet feel like blocks of ice, and my poor little piggie toes suffer the sensation of drawing cold out of the floor. Wherever I sit, I try to keep my feet bundled up. Visitors think I'm nuts because they are all sweating and suffering from the heat.

Dressing all bundled up when I go to church makes me look funny, I'm sure--I've been wearing hats for three months to cover my not-quite-bald head, in addition to all those layers of clothes and sweaters. Sometimes I even have to use my "church blankie" to counter the effects of the powerful air conditioning in the building.

Hubby works in the yard early in the morning to avoid the heat of the day, and when he comes back in the house, he turns on the air conditioner and a fan that blows cold air directly on him. If I'm in the same room, I add to my three or four layers of clothing a sweater or jacket, and a couple of quilts. I'm now trying to train him to turn off the fan and the AC when he leaves the house but I haven't succeeded yet in doing that.

When we leave the house together, no matter the temperature outside, I'm always wearing a sweater or jacket. In fact, when we go out on errands, I often sit in the car enjoying the heat when we've finished the major tasks, while hubby runs into another store to pick up the prescriptions or whatever. It's how we roll. It's a good thing we have dual temperature controls in our car. Hubby's is set at 68, and mine is at 75, and I'm usually still shivering. I keep a blanket in there to shield me from the cold blasts of air coming from his side of the car.

We are headed for Oregon in a couple of weeks--all of our family except our missionary in New England--and I am looking forward to a few cool days at the coast, walking in the sand, eating ice cream in Tillamook, watching colorful kites fly, petting anemones in the aquarium, and sitting on the deck till the sun goes down. Apparently weather forecasters say there's going to be a heat wave in Portland that weekend when we go to an extended family dinner party. I won't mind.





1 comment:

jww said...

All the interesting side effects of chemo! Well, I hope you will indeed be really warm while we're on our Oregon Extravaganza!! I can't wait!!